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Posts Tagged ‘misinformation’

photo courtesy of All About Migraine

photo courtesy of All About Migraine

On December 10 Teri Robert posted an excellent post concerning the difference between Migraine and tension-type headache. Dr. Robert Lipton, one of the nation’s top headache experts presented a clear picture of the difference between the two.

That said, after the YouTube video ends, there are slides on the bottom of the screen that have titles, such as “How to Cure a Migraine Headache Naturally”Cure for Migraines, and Migraines: EFT Tapping Releases Root Cause Part 1. The last one has Michelle explaining what a Migraine is. She has her facts straight about the signs and symptoms or Migraine, but that is about all that is correct in this video clip. She states that right-sided Migraine is a masculine energy relating to past experiences. The opposite is true for left-sided Migraine. Steam started to flow from my ears when I heard:

The body mind connection for migraine [no capital here. This description doesn’t deserve it] has to do with meeting demands and the feeling of not being able to fulfill them. Now we have to ask ourselves why we want to avoid these demands in the first place…..by manifesting a migraine we have a way to take a time out and get extra love and attention.

Right, as if I would conjure up a Migraine so I can miss my son’s graduation party. That was enough for me. I couldn’t listen any more.

Here’s another one: Possible Cure for Migraine

Migraines are very debilitating. I have cured lots of them. Many of them come from guilt that you’ve laid on yourself.

The gentleman then promised that all of the negative input I have concerning Migraine will “be forever disconnected when I sound the buzzer”.  He then sounded a buzzer and said “disconnect”.  I guess now my migraines are cured. I’d laugh if it wasn’t so pathetic.

So gentle reader, be careful. Just because one YouTube video in a series is valuable, doesn’t mean that all of them are.

Have an AWAP day,

Debbie

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I just did a Google search for migraine +cure and in a split second I got 268,000 hits. It boggles my mind to think there are that many people hawking a cure for what is known to be a manageable, neurological, genetic disease with NO known cure. Now only that, but the articles contain outdated information, unsubstantiated claims, and downright lies.
Take this one, for example. Thomas Coffman’s article was published on November 5th in Albert Lea Tribune.com. The title, You Might Discover Your Own Migraine Cure, is a bit refreshing only because he isn’t trying to sell me something. However, he should brush up on his statistics and the latest Migraine research.
Let’s take him on step, by painful step:
  1. “an episodic, paroxysmal, headache with debilitating pain” Migraines are NOT headaches. Headache does not define Migraine. Migraines are not always episodic. Migraines are not always sudden; mine creep up on me. Yes, the pain can be and usually is debilitating. OK he got one out of four.
  2. “They may be the result of tension, or stretching of the membranes around the brain and of the blood vessels and muscles of the scalp” Migraines are not vascular in origin as once thought. This idea is at least 10 years behind current research.
  3. “23 million Americans… suffer from m [M]igraines…” old stats. Magnum cites 32 million Americans with Migraine. The American Headache Foundation cites 29.5 million.
  4. “there are some common trigger factors associated with behavior, which gives us a psychosomatic origin. ” I almost lost my dinner after reading this. Patent lie. This needs no comment.
  5. “Of all the things that affect the migraine patient, I try to identify what the patient may be doing to them selves first.” OK. Blame the patient.

The article goes from bad to worse. I think I have made my point. Thomas, get your facts straight.

photo courtesy of Apolline Fishing Tackle Co.,Ltd.

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Good News: April 15, 2008 GlaxoSmithKline has received FDA approval for a new drug treatment for acute migraine with and without aura. This “new” drug is a mixed bag. It is called Treximet and is a combination of sumatriptan (Imitrex 85 mg) and 500 mg naproxen sodium. Studies have shown that more migraine sufferers received relief within 2 hours than those who took Imitrex, naproxen sodium, or placebo alone. To view the entire press release go here.

Bad news: I was led to this press release after visiting a Fox news story. The gentleman featured in the article, Richard Higgins, takes over the counter medication for his migraines. These medications inadequately treats his migraine. He can still feel the pain and has tunnel vision among other symptoms. The story went on to state that he knew there “were stronger class of drugs available”, but he was hesitant to take them. Richard stated, “It’s a sedative, Patients can get addicted to this medication. Patients have cognitive and thinking problems.” Now, I can only guess what medication he is referring to, but this is a telling statement because there are classes of drugs developed for migraine treatment that are neither sedatives nor addictive.

First, how many migraine sufferers are under-treated? Second, how many are misinformed about effective treatment for acute migraine. Imitrex has been on the market since 1992 and it really changed my life. But what about Richard and the others who falsely believe that migraine medication is addicting? (Caveat, he may have been referring to a class of drugs that are sedatives and are addicting, but most doctors don’t consider these medications as the treatment of choice.)

My first reaction is shame on primary care physicians who are uninformed about migraine and, therefore, are dispensing misleading information. My second reaction is shame on American culture that demands that men and women have a stiff upper lip, suck it up, and go on with life. It seems that these days pain is a non-issue. With news stories about the addictive potential of some pain relievers, some sufferers are afraid to take anything stronger than aspirin.

My next reaction is shame on the reporter who apparently is no better informed on migraine than Richard and on the editor who printed the article without correcting the error.

I guess these days I shouldn’t be shocked at what I read in the media, but I am saddened that a misinformed migraineur was used as a hook to promote a “new” drug that is made from an old drug that could have treated his pain.

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